“Ian Brown’s son Walker is one of only about
300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome—an
extremely rare genetic mutation that results in unusual facial appearance, the
inability to speak, and a compulsion to hit himself constantly. At age
thirteen, he is mentally and developmentally between one and three years old
and will need constant care for the rest of his life. Brown travels the globe,
meeting with genetic scientists and neurologists as well as parents, to solve
the questions Walker’s
doctors can’t answer. In his journey, he offers an insightful critique of
society’s assumptions about the disabled, and he discovers a connected
community of families living with this illness. As Brown gradually lets go of
his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest,
intelligent, and deeply moving, The Boy in the Moon explores the value of a
single human life.”
In qualità di Affiliato Amazon io ricevo un guadagno dagli acquisti idonei - As an Amazon Associate I earn from qualifying purchases - Als Amazon-Partner bekomme ich Geld, wenn ihr über meinen Link etwas kauft - Soy Afiliado de Amazon, así que me llevo una parte si compras algo usando mis links - アマゾンで紹介した商品を買ってもらえると、私にも少しおこずりがもらえる仕組みなんです - 아마존 애소시에이트로서 적격 구매 시 수익을 얻습니다.
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